2013 Project 52

Saturday, February 19, 2011

20 Days

Today is the 20th day of Alyse's NICU stay.  I truly never dreamed she would be there this long, which makes the waiting even harder.  It really is just a waiting game at this point.  Around February 7th, she met all of the criteria for coming home except for the one (bradycardia), so we continue to wait for her to get over that one last hurdle.  If I hear one more nurse say that she'll be going home 'soon', I'll probably go ballistic.  (I can't even tell you how many times I have heard this in the last 2 weeks!)  Although her status basically has remained the same every day, each day that passes is actually starting to feel like a major setback because we aren't getting any closer to her coming home.  We got our hopes up earlier this week when she had two long periods of no 'spells' (36 hours and 24 hours), but since she had 4 spells yesterday, we are basically back to square one.  However, the doctor assures us that it's a good sign that her spells are very short and she almost always self-recovers.  But, as he told me yesterday, he can't guarantee that she'll be coming home next week or even the week after that.  And so, we wait...

It's a good thing she is so cute...

First smile caught on camera.  Who cares if it's just gas?

Asleep in Mommy's arms

Ready to eat after being weighed.

Hey, this Daddy guy is pretty cool.

Thinking hard.

A sweet bow for a sweet girl.

She's not so sure about the paci.

Tiny girl.  She's gaining fast though and now weighs 5 lbs 6oz!

All bundled up and ready to sleep!

Sleepy girl.


Neala n Dave said...


I can't imagine what you are going through. Our prayers continue to be with you.

Neala n Dave said...

I should have added, that she is very beautiful. She sure doesn't look like she should be in the NICU.

Susannah said...

Hang in there, Courtney! I can't imagine how stressful and difficult these last 4 weeks have been for you. I am keeping you in my daily prayers and can't wait to hear the good news that she is home.

And I think she looks just like YOU! Beautiful, beautiful tiny girl -- and I love that picture of her in her ballerina jammies. Adorable. :)

Mary said...

You are right -- she is so cute! We pray every day that she'll be able to be home with her family.